Bye, Bye feeding tube!

Finally! We get to see her whole face with nothing on it, except the cute little precious face! That is probably so much more comfortable for her! I got to feed her a couple bottles now, that is about the only time she wants to wake up for us now. If we go there in between times, she is impossible to wake up! I had to include the last one...it was funny! I think it was her envy of us leaving! LOL

Cute in purple!/Micro colon

She looks so cute in her purple outfit!
I had a meeting with the docs and they told me that Jordin has a micro colon because it was not trained due to her bowel obstruction. So they need to 'train' her colon to expand so that when they hook her back together, it will go through and not get stuck at that point. In the meantime, she will only be getting the small amount of food she can take and be dependent on the IV. She could become jaundice and develop a type of liver disease, which they say is reversible when she starts to eat more. They will be keeping an eye on this. Hopefully she avoids this. She has been strong so far!

Cystic Fibrosis confirmed

Her Cystic Fibrosis was confirmed. Since then she has had an x-ray that showed mucus cloggnig in her lungs so she is being treated with nebulized medicines. Ashlee gets one of them for prevention, Jordin is taking that same one, Pulmozyme, twice a day and Albuteral once a day. She cultured Staph, a common bacteria for CFers to culture...she was given antibiotics to get rid of that. Ashlee just cultured the same prior to Jordin's arrival. That is only the second time she has ever cultured anything. Jordin has a little cough from it...hopefully she gets rid of this soon! Other than that, she has just been hanging out, taking more milk each day.

My first clothes!

This is her first little shirt she got to wear! (Well except for the white onesie they put on her that was 3 times too big for her...it was just kinda wrapped around her! LOL) I love this cute little shirt! We can bring in clothes for her to wear now, pretty much anything with out zippers. Daddy was getting her changed and dressed in the pics.

Surgery

Saturday morning she was scheduled for surgery. They found ALOT of miconium illeus that killed a small portion of her intestines. They cleaned it out and took out the dead intestines. They could not sew the ends together right away so she has a 'stoma' (a bag on her left that her poo goes into) for 6 weeks when they will do another surgery to 'reconnect' her. She did great with the surgery and has been progressing very quickly!
Most likely she will stay at the hospital through the next surgery, so we plan at least 2 months unfortunately.

Enjoy

Thursday and Friday we just got to visit and enjoy her! Waiting patiently for her enimas to work.

Cherie grandma gave Jordin a blanket, we used it for covering her incubator!

No Movement! Here I come!

The night of May 5, 2009 I realized that Jordin had not moved for at least the past day. It really started to freak me out cuz I couldn't get her to move no matter what I did...her legs would just bounce back when I pushed on one, like it was limp or something. I agreed to wait til morning to see if she started moving. By morning, no movement! I called into work and waited til 8am to call the docs. They sent me to the hospital. After I got there and they hooked up the heart monitor I was SO relieved to hear a heartbeat! Finally I was transferred to Spectrum where they did a second ultrasound for the day and the doc was unsure what was wrong with the baby. He said she would be best to come out and find out the problem. So on May 6th at 7:48pm, Jordin was born by c-section. She weighed 6lbs 1oz and was 19 1/2 inches long! Good size for being 5 1/2 weeks early! She had the ambilical cord around her neck but started breathing and moving fine after delivery! What a blessing!