Well, Jordin has been gradually losing a pound for the past 2 months...no gain since her hospital stay, only loss...she is now down to 17 pounds. We recieved 2 referrals today, 1 to Peds Surgery and 1 to an Intensive Feeding Program. She has poor growth and the doc said it is time we step in and put in a g-tube :o( They cannot risk her little lungs any longer. They have given her time to 'catch up' and she is falling behind even more now. This will have a toll on her lungs later in life and she needs the weight. They also said she has GERD and needs a nissan fundoplication. They will do that surgery at the same time as the g-tube.
So, within the next month, that is what we will be doing...getting a g-tube placed and having a nissan fundoplication. Fun, fun...I am SO excited...NOT!!!! Grrrrr.....
Oh, I should add that Ashlee has Hand, Foot, and Mouth Disease (HFMD) and has many sores in her mouth. She is doing okay though, just not really eating a whole lot and not drinking her Boost at all. Hoping Jordin does not come down with it...Here she is in her neb mask and wanted her goggles so the 'smoke' didn't get in her eyes! LOL
Well, that's really all I have to say right at the moment. I am just stressed out and tired and now Jordin is waking up. Will try to post news as it becomes available.